Search by Engagement
Please select the Engagement checkbox to see all of the Parkinson resources about Engagement
Public Engagement
Advice for hosting research focus groups and meetings online.
MRCT
Developed by Harvard, this toolkit is aimed to help researchers improve diversity, inclusion, and equity in clinical research.
MRCT
This link will take you the MRCT's Center's Clinical Research Glossary. This glossary is a list of research words and their meanings. This is the result of a pilot project to develop a plain-language clinical research glossary with an amazing workgroup of patient...
Patient Focused Medicines Development
Engagement of patients in early dialogue with Health Technology Assessments (regulators etc) is essential. These guides will help structure that engagement.
Patient Focused Medicines Development
The objective of this toolkit is to offer information, material and references that can support patient communities and pharmaceutical companies with different backgrounds (such as different levels of expertise, or from different disease areas) interested in setting...
Patient Focused Medicines Development
This How-To guide is part of a series from Patient Focused Medicines Development (PFMD) that provides a set of instructions on how to involve patients in the co-creation of plain language summaries (PLS) of peer-reviewed publications, including journal articles and...
Patient Focused Medicines Development
This How-To Guide on engaging patients in clinical trial design is part of a series of PFMD How-To Guides that have been co-created in a multi-stakeholder environment built with the Patient Engagement Quality Guidance as a starting point. All How-To’s are connected...
Patient Focused Medicines Development
This How-To Guide is part of a series of PFMD How-To Guides that have been co-created in a multi-stakeholder environment built with the Patient Engagement Quality Guidance as a starting point. All How-To’s are connected and provide a full set of instructions on how to...
FDA
Provides guidance for inclusivity in clinical research.
FDA PFDD
Guidance on patient-focused drug discovery.
This is a growing resource
If you have a resource you would like to recommend, or if you have an amendment to this site please contact us.